Home > News > World Psoriasis Day 2017 – Information for non-members of IFPA

World Psoriasis Day 2017

 Information for non-members of IFPA

 

29 October is the World Psoriasis Day. Psoriasis is so much more than what is seen on the outside. Psoriasis patients are, for example, at increased risk to develop so-called comorbidities and to suffer from other noncommunicable diseases (NCDs) such as diabetes, cardiovascular diseases, metabolic syndrome, Crohn’s disease and more.

There is an urgent need to give a clear picture of the reality of the life faced by people living with pso/psa worldwide and to show that the disease has very many sides. This year’s theme “Psoriasis Inside Out” is all about showing all aspects of the disease and to give a face to pso/psa and to share stories. For that reason, IFPA and its members in 56 countries are organising awareness-raising and advocacy campaigns to improve access to treatment, increase understanding and build unity among the psoriasis community.

This year’s campaign aims at:

  • Giving a clear picture of Pso/Psa
  • Making people understand that Pso/psa is much more than just the psoriatic disease and to focus on NCD comorbidities
  • Showing that there is a person behind the disease that suffers daily from multiple conditions
  • Raising awareness about Pso/Psa having a major impact on the patients and their families lives

We have been receiving requests and enquiries from all around the world from non-member organisations, individuals and medical institutions how they can support the World Psoriasis Day. We are thrilled to see such a huge interest in the World Psoriasis Day and we have developed the below guidelines on how you can support the World Psoriasis Day and the “Psoriasis Inside Out” campaign organised by IFPA.

  • If you are a representing a clinic or a hospital, please download our Psoriasis Inside Out poster and feel free to increase awareness on psoriasis in your medical institutions and among medical staff and patients. You can also contact one of our member associations in your respective country or region and organise a closed or a public event at your workplace to discuss psoriasis from patients’ perspective. You may also download and read our World Psoriasis Day Information Folder.
  • If you are representing a civil society organisation or an initiative group, please join the global conversation on the social media by using our official campaign hashtags #pso-me #psa-me #NCDs #WPD17 and actively engage in social media forums to raise awareness on psoriasis. You can also contact our member association in your country or region to organise a local campaign to attract the attention of the national or local government, media and medical professionals to psoriasis and psoriatic arthritis and help to eliminate stigmatisation and discrimination associated with psoriasis.
  • If you are representing a national or international media, you can contact us at IFPA or our member associations around the globe to access a media kit and support this global call. You can also download our issue brief on “Psoriasis can be disabling, but should not be a barrier to full participation in society” and “Brochure on Psoriasis.”
  • If you are representing a business, you can learn more about how you can support IFPA as a corporate actor. You can also contact IFPA or our member associations to learn about our work in this field.
  • If you are representing a government or public institution, you can cooperate with local and national psoriasis associations and invite local influencers and ambassadors to public events and television programmes to increase the impact of the campaign and build a more psoriasis-friendly and -aware setting. You can also emphasise to your government the need for further research on psoriasis, and identify successful approaches for integrating the management of psoriasis into existing services for noncommunicable diseases, as per the Resolution WHA 67.9 of the World Health Organisation.
  • If you are an individual, you can read about “Psoriasis Myths and Misconceptions” and increase awareness among your family and friends. Additionally, you can join the global conversation on the social media by using our official campaign hashtags #pso-me #psa-me #NCDs #WPD17. You may also support World Psoriasis Day activities such as forums, swim events, road shows, community events, and social media campaigns both before and on 29 October. A road to global understanding, tolerance and support starts with a small step at an individual level.  Even honouring the dark blue and orange ribbon on your shirt or dress will help.

We lead and coordinate a number of World Psoriasis Day activities around the world If you have any questions regarding campaigns or materials, please contact us at info@ifpa-pso.com or explore the World Psoriasis Day page on our website.