First-Ever Psoriatic Disease Response Index Identifies Opportunities to Engage in Policy Conversations, Help Shape National Policies, and Raise the Understanding of Psoriatic Disease Treatment, Prevention, and Care
29 October 2020 – Today, the Global Psoriasis Coalition (GPC) and the International Federation of Psoriasis Associations (IFPA) launched the Psoriatic Disease Response Index, the first-ever effort to comprehensively survey, quantify, and analyze health systems’ responses to psoriatic disease on an international scale.
“With the launch of this report and the conclusions we draw, we can see how psoriatic disease can be a model condition to gauge the overall well-being of a health system,” says Dr. Hoseah Waweru, IFPA President. “These are important learnings, especially given the current strain on healthcare systems worldwide, and are critical to help those suffering from psoriatic disease improve their access to care, feel empowered, and have a voice.”
Through the valuation of selected enablers and barriers, opportunities are identified for how each country can identify, treat, and support people living with psoriatic disease, including mitigating the negative individual, societal and economic costs. The countries examined were Denmark, France, Germany, Sweden, and the United Kingdom. The analysis compiles and weighs indicators to create an assessment of the five countries’ performance. The Index evaluates psoriatic disease across the following categories: public awareness, provider awareness, patient engagement, health systems, and enabling environment. The full report, available at https://www.globalpsoriasiscoalition.org/psoindex along with documents outlining key findings and recommendations.
“This community has achieved a lot in the past years. We hope this Index will help enable a much-needed policy conversation at local level, where change can happen faster”, says Mario Ottiglio, Managing Director at the High Lantern Group and supporting the Global Psoriasis Coalition. “Timely and sustained action is needed to encourage early detection and access to care. Political and institutional leaders must champion the issue to give it the attention it deserves. The solutions won’t be achieved overnight, but the time to commit is now as we have seen that health system capacities and responses are essential, now more than ever.”
It was virtually launched today, World Psoriasis Day at the 29th Congress of the European Academy of Dermatology and Venerology.
To learn more, visit: https://www.globalpsoriasiscoalition.org/psoindex
About the Global Psoriasis Coalition
Millions of people worldwide live with psoriasis —a chronic, non-communicable disease (NCD) that inflicts a serious mental, emotional, social, and economic toll on both the individual and the societies they live in. Those affected have a greatly increased risk for comorbid NCDs like diabetes and cardiovascular disease, reducing quality of life and generating higher costs for health systems. Rates of psoriasis have been increasing globally, and in some countries, have doubled in the last several decades. Yet, there is no cure for psoriasis, and those living with the disease often struggle to receive an accurate diagnosis, have difficulty accessing appropriate treatment and care, and face discrimination and stigma. Additionally, up to 30 percent of people with psoriasis also develop psoriatic arthritis, which are always considered as a part of our conversation.
The Global Psoriasis Coalition is a program of the International Federation of Psoriasis Associations (IFPA), inspired by developments in the non-communicable diseases (NCD) policy agenda that calls on civil society to advocate for a people-centered and integrated response to psoriasis. We are global advocates joining medical societies, non-governmental organizations, foundations, corporate partners, and other relevant associations to cooperate across borders, across disease areas, and across sectors. We are a united front of diverse voices committed to focusing global health conversations on psoriasis, fostering behavioral change and creating opportunities for action that will change the living conditions of people with psoriasis. For more information visit www.globalpsoriasiscoalition.org