President: Lars Ettarp
Chairman, Stockholm Psoriasis Association
After being diagnosed with psoriasis at the age of 12, Lars became an active member of the Swedish Psoriasis Association in 1967. He continuously strives for improved life quality for people with psoriasis, by prioritizing access to qualified care and supporting psoriasis research. Lars has set up treatment centers for patients with psoriasis and chronic skin diseases in Sweden. Before retiring, Lars was Assistant Undersecretary of Labour and Director General of SWEDAC (a Swedish public authority assessing laboratory competence, certification and inspections and implementing EU and WTO regulation). Lars has been President of the IFPA Board since 2001.
Vice President: Hoseah Waweru, M.D.
Chairman, Psoriasis Association of Kenya
Hoseah Waweru (MD) has been practicing as a dermatologist for almost four decades and is both founder and long-serving Chairman of the Kenya Association of Dermatologists. Because of a family history of psoriasis, Hoseah decided to specialize in psoriasis care and became the founding President of the Psoriasis Association of Kenya. Throughout the years, he has delivered many lectures on psoriasis across the world. In 2015, Hoseah was Chairman of the Complementary Programme at the 4th World Psoriasis & Psoriatic Arthritis Conference in Stockholm. Recently, he joined the faculty of the Psoriasis Academy.
Secretary: Silvia Fernandez Barrio
President, AEPSO / Psoriasis Association of Argentina
Buenos Aires, Argentina
Professionally, Silvia worked as a radio and TV journalist in Argentina from 1979 until 2000. At the age of 18, she was diagnosed with psoriasis. When a major psoriasis flare-up in 2004 left her unable to afford her new medication, Silvia took the initiative to found AEPSO – the first and only psoriasis patient organization in Argentina. Since its creation, AEPSO has helped over 14 000 people across the country. Besides her role as President in AEPSO, Silvia is also the President and founder of IFPA’s regional member, LATINAPSO / the Latin-American Network of Psoriasis.
Treasurer: Josef de Guzman
President, PsorPhil / Psoriasis Association of Philippines
Josef de Guzman’s career at a large multinational in the Philippines was cut short by his psoriasis outbreak in 1996. His experience as a psoriasis patient then led him on a successful health advocacy path, focusing on epilepsy, cervical cancer, hemophilia and schizophrenia, amongst others. In 2005, Josef formed PsorPhil as an online support group for Filipinos. The group turned into the leading psoriasis organization in the Philippines, with over twenty chapters. Josef also founded PsorAsiaPacific, IFPA’s regional member in Asia. Currently, Josef mentors other countries in starting up patient organizations and gives lectures on the patient perspective at medical congresses in Asia, the EU and the Middle East.
Member at Large: Ingvar Águst Ingvarsson
Chairman, Spoex / The Icelandic Psoriasis and Eczema Foundation
Ingvar was diagnosed with psoriasis when he was 23 and has had both ups and downs with the disease since then. During difficult times, he could depend on the valuable support of Spoex volunteers. When his psoriasis had improved and he was invited to join Spoex’ Board a few years later, Ingvar thus gladly accepted the invitation. Since 2014, Ingvar has been the organization’s Chairman. Being able to give something back to society and helping others is something he sees as a privilege. Currently, Ingvar works for Microsoft Iceland as a Technical Solutions Professional.
Substitute: Leticia Lopez
Executive Director, APAPP / Psoriasis Association of Puerto Rico
San Juan, Puerto Rico
Leticia was diagnosed with psoriasis at the age of 12 and developed psoriatic arthritis when she was 18. She has a Doctorate degree in Education (specializing in Guidance and Counseling), with her dissertation focusing on life histories of psoriasis patients. Leticia’s research’ main conclusion pointed out the need for a psoriasis patient support group in Puerto Rico. As a result, APAPP (Asociación Puertorriqueña de Ayuda al Paciente de Psoriasis) was started a year later. Currently, Leticia works as a school counselor in Academia Maria Reina in San Juan (Puerto Rico) and serves as LATINAPSO’s Secretary.
Substitute: Kathleen L. Gallant, MPA
Ex-Officio, National Psoriasis Foundation/USA
Kathleen chairs the IFPA Task Force on Noncommunicable Diseases (NCDs), working on global psoriasis advocacy with the World Health Organization and United Nations agencies. She lives in Pittsburgh, Pennsylvania and serves as ex-officio to the United States’ National Psoriasis Foundation Board of Directors. Kathleen holds a Master’s degree in Public Administration / Nonprofit Management from the University of Pittsburgh Graduate School of Public and International Affairs.