06 September 2022
Today, at the 31st European Academy of Dermatology and Venereology (EADV) Congress in Milan, Italy, IFPA the international federation of psoriatic disease associations, has announced the launch of its campaign to build the IFPA Island on the Nintendo video game, Animal Crossing ™: New Horizons.
This exciting new campaign is called “Explore Psoriatic Disease Together” and is a call to action to the psoriatic disease community to help build out the island together as a journey through the condition. It aims to create an everlasting Dream Island within the Animal Crossing game that can be explored by gamers with psoriatic disease and players from the general public who want to learn more about psoriatic disease. When completed, it will feature six modules that each cover a particular aspect of managing psoriatic disease. The campaign runs until World Psoriasis Day on October 29th, when the completed island will be unveiled.
IFPA have enlisted the help of Joel Nelson (Joel versus Arthritis) to lead the creation of the island. Joel is an award-winning arthritis and psoriasis patient leader, content creator, and expert in 'Lived Experience', as well as being an avid gamer.
Throughout the campaign, Joel will be broadcasting a show each week on his Twitch channel (https://www.twitch.tv/joelvsarthritis) to share live progress of the build and discuss the key topics in psoriatic disease that are being covered in each section of the island. This begins with three live shows that are being broadcast from EADV in Milan on Tuesday September 6th (8am EDT/1pm BST/2pm CET) and Friday September 9th (first show at 4am EDT/9am BST/10am CET and second show at 8am EDT/1pm BST/2pm CET), which can be accessed from Joel’s Twitch channel (see link above). These shows will follow the development and build of the Medical Zone of the island, with input from psoriatic disease experts attending EADV. The Medical Zone will provide education and insights about diagnosis, management, healthcare professional support and medications.
Following EADV, Joel will be broadcasting weekly until World Psoriasis Day, featuring a different section of the island each week and covering topics including family support, relationships, intimacy, mental wellbeing, physical activity and support for patients.
Joel Nelson explained, “I am passionate about using my story and experiences to help others affected by psoriatic disease and I see this as an essential part of advocacy for people affected by psoriatic disease. It is critical to have places where lived experiences of psoriatic disease can be shared and where people affected by psoriatic disease can connect with the psoriatic community and obtain much needed peer support. The IFPA Island on Animal Crossing ™: New Horizons is an exciting new way to do this that has not been done before in psoriatic disease and will be particularly valuable for young people. There are many young people out there who do not know how and where to access important information about psoriatic disease and we hope that this island can help them with their condition by providing the answers and support they need.”
Using an island on Animal Crossing ™: New Horizons is a novel and innovative approach to education and engagement with the psoriatic community. It is specifically designed to engage young people affected by psoriatic diseases and provide a place for them to learn more and share their experiences with others who are affected by the same conditions.
Frida Dunger Johnsson, Executive Director, IFPA explained, “We want to find new ways to engage with young people and believe that engaging via video games is a novel and exciting approach. We need to provide more forums for young people to share their experiences and learn from each other about living with psoriatic disease. This approach is at the cutting edge of patient engagement and advocacy and we believe we have an opportunity to reach young people affected by psoriatic disease in the forums and platforms they use already. We are proud as an organization to be leading the way and are excited about building a long-term way to engage young people.”
If you want to support the build please contact IFPA at firstname.lastname@example.org and if you want to follow the progress of the build, you can connect in game or watch Joel’s shows via Twitch each week at https://www.twitch.tv/joelvsarthritis. Animal Crossing ™: New Horizons is available exclusively for the Nintendo Switch and Nintendo Switch Lite systems.
IFPA is the global organization uniting all people living with psoriatic disease – regardless of where they live or what kind of psoriatic disease they have. IFPA’s member associations represent over 60 million people living with psoriatic disease worldwide. Together they advocate for progress.
World Psoriasis Day is organized each year by IFPA. It aims to unite the global community behind the need to raise awareness and issue a call for action in support of people with living with psoriatic disease. World Psoriasis Day has been celebrated on October 29th for more than a decade and is observed in over 50 countries.
For World Psoriasis Day 2022, the theme is Unloading Psoriatic Disease. Mental health is increasingly being recognized as a significant part of living with psoriatic disease, due to the physical symptoms and day-to-day difficulties of living with the disease. By unpacking the causes of mental health complications, World Psoriasis Day 2022 aims to show people affected by psoriasis that we can start to find solutions to ease their own burden and they can take steps to improve wellbeing.
For more information, please contact: Camille Lancelot (email@example.com).
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