19 June 2024
By IFPA
Psoriatic disease has a severe impact on the lives of those living with the disease. It is estimated that at least 60 million people live with psoriatic disease, but we know that many more are affected by it. In that group, we can include family members, such as parents, siblings, children, partners, and caregivers.
In this report, we have highlighted the important role of the family, caregivers, and partners, also known as the Greater Patient, in the life of those affected by psoriatic disease. Despite several studies reporting a significant burden of psoriatic disease on the family, there is a general lack of understanding of the real impact on their lives. Family and partners not only have an emotional support role but also help with everyday tasks and treatment. This, however, comes with a cost for their own wellbeing that is not discussed enough.
We aim to raise awareness of the wide impact of psoriatic disease and show initiatives implemented in several countries to improve the quality of life of the Greater Patient. Finally, we present recommendations that can be applied locally and globally to increase awareness of the impact of psoriatic disease in the family, fight stigma, and improve their well-being.
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