Family Wellbeing

Raising awareness of the impact of psoriatic disease on the family members of those living with the disease.

Psoriatic disease affects the wellbeing of family members, partners, and caregivers of people with psoriatic disease. The impact of the disease is seen as a direct consequence of the disease itself, e.g. the toll of the diagnosis and treatment journeys, how it affects everyday family life, the burden of care for the person with the disease, and the stigma from society.

We know that misconceptions, prejudices, and stigma are correlated with the lack of knowledge about the disease. Studies have shown that misconceptions are primarily broken down by meeting or knowing someone with psoriatic disease.

It is time to stop the stigma. As a global organization, we want to bring awareness to the real impact of psoriatic disease on parents, siblings, children, partners, and caregivers globally, and improve their wellbeing.

Watch the Webinar on Psoriatic Disease and Intimacy

webinar Stigma, Living with Psoriatic Disease ...

IFPA Webinar - The Path to Pleasure: Shedding the Stigma of Psoriatic Disease and Intimacy

Project Sponsors

Contact person

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    Raquel Vaz

    Scientific Project Leader

    Raquel is responsible for providing scientific advice and to ensure the gathering and sharing of trustworthy information to those living with psoriatic disease, healthcare providers, policy makers, and the community. Raquel has a PhD in Genetics and vast experience in clinical and translational research in rare diseases and in psoriasis.

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