25 February 2022
On December 16th 2021, the UN General Assembly adopted the first ever UNGA Resolution ‘Addressing the challenges of persons living with a rare disease and their families.’ This historic milestone was authored by tireless advocacy on the part of the rare disease community. It is a big step towards life-changing policy for people living with rare diseases, including rare psoriatic diseases.
While the resolution on rare diseases is a powerful step forward, there are still unmet needs and challenges to be addressed. IFPA continues to call for:
IFPA continues to advocate for persons living with all forms of psoriatic disease - including advocating for access to diagnosis, treatment, health and social care and social opportunity for people affected by a rare forms of psoriatic disease.
Here’s how can you make a difference for people living with rare forms of psoriatic disease.