The Project Rare GPP fund is an opportunity for patient organizations to reach those in your region living with GPP (Generalized Pustular Psoriasis). National patient organizations are crucial to the fight against psoriatic disease, and often lack resources to carry out all the projects they wish for. With the financial assistance from this fund, you can realize some of these projects.
Project Rare GPP's vision is to improve the wellbeing and quality of life for those affected by GPP.
In 2023, Project Rare GPP dedicates 100,000 EUR to patient organizations that want to:
- connect and improve wellbeing and quality of life of those affected,
- lead research projects to improve patient experience, or
- participate in educational/networking events.
GPP is rare. We know that those living with and affected by the illness are few. Knowledge of their burden and shared experience is limited. But GPP’s rarity in no way minimizes its impact on each individual affected. With this foundation, we will meet the needs of those that are too often left behind, and who are most in need of relief.