Ambassador Program

Lived experiences from the full spectrum of psoriatic disease

IFPA Psoriatic Disease Ambassadors speak up for change on all fronts. Ambassadors are strong advocates. They are individuals with personal experience living with psoriatic disease and/or as a family-member, close friend, or caregiver to someone with psoriatic disease. They publicly raise their voices to call out decision-makers, demand patient involvement in research, and strengthen the psoriatic disease community.


Apply to become an ambassador

  • Zakieyah Ajouhaar

    Zakieyah Ajouhaar

    Ambassador

    Cape Town, South Africa

    "I have been living with psoriatic disease for the past 10 years. As an ambassador I'd like to create a greater awareness about psoriatic disease especially in my community."

    Learn more about Zakieyah >>

  • Iman Al Gaithi

    Iman AlGhaithi

    Ambassador

    Buraimi, Oman

    "I was diagnosed with psoriasis 12 years ago. As an ambassador, I fight for myself before the rest. Raising our voice to the world to learn about psoriasis means a new life for every patient."

    Learn more about Iman >>

  • Jarar Ali

    Jarar Ali

    Ambassador

    Karachi, Pakistan

    "I have been living with Psoriasis since 8 years. As an Ambassador I want to convey this to the general public that Psoriasis is not contagious. The government need to work for equal access to treatment, work and support, immediately."

    Learn more about Jarar >>

  • Emmylou Casanova

    Emmylou Casanova

    Ambassador

    Manila, Philippines

    "I have been surviving Psoriatic disease for the past 20 years and now I am ready to raise my voice about my plight for the benefit of those who suffered like me. As an ambassador, I would like to stop the stigma, demand equal access to treatment, and insist that the national governments take action, Now!"

    Learn more about Emmylou >>

  • Linzi Dunlevy

    Linzi Dunlevy

    Ambassador

    Motherwell, Scotland

    “I’ve been living with psoriasis for more than 10 years since I started teaching in my early 20’s. I have experienced 4 different types of psoriasis and I feel lucky that I am at a stage now where I am managing my psoriasis and I feel in control of it. I want to raise awareness so that no sufferer ever feels alone.”

  • Ilse van Ee

    Ilse van Ee

    Ambassador

    Leusden, Netherlands

    "I am a professional patient advocate using my lifelong journey with psoriasis to fight for reproductive health, people with psoriatic disease, and more."

    Learn more about Ilse >>

  • Hellen Wangui Gathere

    Hellen Wangui Gathere

    Ambassador

    Nairobi, Kenya

    "I've been living with psoriatic disease for 15 years. As an IFPA Ambassador I advocate for equal access to medication and treatment the world over, and more importantly I advocate for completely doing away with stigmatization."

    Learn more about Hellen >>

  • Pierre Celestin Habiyaremye

    Pierre Celestin Habiyaremye

    Ambassador

    Kigali, Rwanda

    "Where I come from, people see psoriasis as a curse. I want to correct the stigma and help people who have the same disease."

    Learn more about Pierre >>

  • Yervand Hakobyan

    Yervand Hakobyan

    Ambassador

    Yerevan, Armenia

    "As a practicing hematologist living with mild psoriasis, I believe in cooperation between patients and the medical community for advocacy."

    Learn more about Yervand >>

  • Christina Larsen

    Christina Larsen

    Ambassador

    Fjenneslev, Denmark

    "I have been living with psoriatic disease for 30 years. As an Ambassador I fight for equal treatment and to eradicate taboos."

    Learn more about Christina >>

  • Leticia Lopez

    Leticia Lopez

    Ambassador

    San Juan, Puerto Rico

    "I was diagnosed with psoriasis at the age of 12 and developed psoriatic arthritis when I was 18. I founded APAPP, the patient association in my country to meet the need for patient support that I uncovered while writing my doctoral dissertation in Education (specializing in Guidance and Counseling)."

    Learn more about Leticia >>

  • Joel

    Joel Nelson

    Ambassador

    Norwich, UK

    "I am an arthritis and psoriasis patient advocate and writer, sharing my story of psoriatic-associated Juvenile Idiopathic Arthritis to raise awareness."

    Learn more about Joel >>

  • Sofia Lovi

    Sofia Lovi Ramasamy

    Ambassador

    Kuala Lumpur, Malaysia

    "I speak up for psoriatic disease and people who are differently abled. It is a pleasure to be a part of this advocacy journey."

    Learn more about Sofia >>

  • Kate Reynolds

    Kate Reynolds

    Ambassador

    Windsor, Canada

    "After surviving a severe GPP flare in 2019, I become motivated to advocate for better awareness, diagnosis, and treatment for people living with rare forms of psoriatic disease."

    Learn more about Kate >>

  • Reena

    Reena Ruparelia

    Ambassador

    Toronto, Canada

    "I've been living with psoriatic disease for 26 years. As an Ambassador, I use my voice to amplify the voices of others who are living with the condition so we can all move together into a healthy and more hopeful future."

    Learn more about Reena >>

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    David Salazar

    Ambassador

    Quito, Ecuador

    "These 12 years with psoriatic disease have taught me to rethink my health and my relationship with others. As an IFPA Ambassador I want to show that psoriasis can become your greatest strength to move on with your life."

  • Chiara Lionel Salim

    Chiara Lionel Salim

    Ambassador

    Jakarta, Indonesia

    "I have been living with psoriatic disease for 13 years. I have found advocating for psoriasis as my mission in life with the goal of eradicating stigma, educating people on psoriasis, and uplifting their quality of life, especially in Indonesia."

    Learn more about Chiara >>

  • Rocyie 2

    Rocyie Wong

    Ambassador

    Kuala Lumpur, Malaysia

    "I have been living with psoriatic disease for 14 years. As an ambassador, I fight for inclusivity."

    Learn more about Rocyie >>

  • Orie Yamashita

    Orie Yamashita

    Ambassador

    Tochigi, Japan

    "I have been living with psoriatic disease for about 30 years. As an Ambassador, I would like to raise awareness of psoriasis, aiming for a world without suffering from psoriatic disease. I would also like to disseminate correct information about psoriatic disease to patients and society."

    Learn more about Orie >>

Contact person

  • Camille Lancelot 2434 1549close web

    Camille Lancelot

    Community Manager

    Camille runs IFPA's member services and capacity development programs. She has a background in development work and teaching as well as a Master in Cultural Projects for Development. Camille has lived and worked in the USA, Senegal, Benin, France, and Sweden.

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